WP4 - Policy [Months: 1-48] WP Lead AFC
1.Power Up for Parents: parental involvement and shared decision making through Technology
2. Open-access data platform for behavioural monitoring and visual analytics for mental health.
3. Ethics, privacy and service users rights in technology-enabled mental health services.
ESR13, Host: AF, Partners: IC [6 months], UCL [throughout]
Crucially this project will develop and evaluate a new app (Power Up for Parents) that enables greater involvement of mothers and fathers (or caregivers) in their child’s therapy. ESR13 will conduct a review on existing resources to promote parents’ shared decision making in Child and Adolescent Mental Health Services (CAMHS). ESR13 will then move to IC to gain an understanding of app development and to develop a prototype of Power Up for Parents, using best practice guidelines. ESR13 will return to AF and test the app in interviews with parents, young people, and therapists in CAMHS teams and will conduct a wait-list control feasibility trial (6 months each for the control phase and intervention phase) to collect the necessary parameters to adequately plan and calculate the required sample size for a full prospective cluster controlled trial of Power Up for Parents. Finally, ERS13 will delivery detailed policy guidelines for technology-enabled parental involvement in decision-making.
Task 4.2, Open-access data platform for behavioural monitoring and visual analytics for mental health.
ESR 14; Host: DTU: Partners: RHP [on-going], UCD [3 months], TID [4 months]
This project will provide a platform for open-access data collection, sharing, and visual analytics of behavioural data collected from wearable and mobile sensors. Ultimately this platform will allow researchers to share clinically collected behavioural data and run standardized analytics on it, enabling researchers to find patterns in mental disorders across a large number of patients, and also supporting rigorous replication. ESR14 will carry out a review of existing data collection systems and approaches and will then move to the UCD to work with ESR15
and solicit initial ethical, legal, and privacy requirements. ESR14 will design and develop open access platform for behavioural data sharing and analytics. A intersectoral secondment at TID, will allow ESR14 to define additional requirements for network-based (i.e. network provider) data collection, which potentially can be an important source. ESR14 will focus on deployment and integration of the final platform. Throughout the project, ESR14 will work with researchers at RHP in order to semantically model clinical data.
ESR15, Host: UCD, Partners: ARC [6 months]
This project will develop a customised ethics, privacy and service users rights framework to support and guide
developments in the ICT mental health technologies and services area by ensuring that ethical considerations/
protocol fit with the contemporary requirements of ICT mental health service provision. ESR15 will explore current applications of privacy and security models with the aim of identifying gaps in the current model. ESR15 will then develop a framework to be utilised as a guiding tool when technology enabled interventions are being constructed with the aim of ensuring that the service users’ rights are being protected. The developed framework will be tested and modified in an industry setting while on secondment at ARC. The secondment will also facilitate the development of skills and knowledge in the area of applying international standards in terms of regulation in the medical device/intervention field. Finally, upon return to UCD the framework will be finalised and a comprehensive protocol will be developed to ensure that service users rights are considered at all stages of
technology-enabled YMH interventions.